ASSOCIAÇÃO BRASILEIRA DE
ESCLEROSE LATERAL AMIOTRÓFICA
Home
              QuemSomos
              Institucional
              TtulosePrmios
              Campanhas
              FaleConosco
      
 
 
 
 
 





Contato

Telefone:
(11) 5579-2668

E-mail:
abrela@abrela.org.br
  Publicações

  

Reabilitao em Doenas Neuromusculares Guia Teraputico Prtico

Rua Dra. Neyde Apparecida Sollitto, 435 - V. Clementino - S.P. - 04022-040

Horrio de Funcionamento:

De 2, 3, 4 e 6 das 9h30min s 17h00 e 5 das 10h15min s 16h30min

Tambm vendem pela internet no site www.livrariarodelu.com.br


Clique aqui - Arquivo 1




  

Descasos 2 Uma advogada as voltas com o direito dos excludos


Clique aqui - Arquivo 1




  

Diet and Nutrition in Dementia and Cognitive Decline

Colin R. Martin, Victor R. Preedy - 2014 - Medical

The ALS Practice Parameter Task Force and the Quality Standards Subcommittee of the ... Stanich P, Castro I, Nakao FS, Oda AL, Salvioni CCS, Vital EC, et al.



Clique aqui - Arquivo 1




  

MOMENTOS DE VIVER Partilha de uma experincia com Deus aps diagnostico de ELA

João Marcos Andrietta relata neste livro a influência de estar ligado à Deus quando se passa pela experiência de viver com uma doença incurável pela medicina e na luta pelo dom precioso da vida. Daí, o nome do livro: “Momento de Viver”! - Aqui você encontrará um testemunho da manifestação do amor e da misericórdia de Deus. A esperança é a maior aliada.


O livro está à venda no Lar Frederico Ozanam. Pedidos pelo e-mail lar.fozanam@bol.com.br ou pelos telefones (11) 4029 2376 / (11) 4028-9870 ou (11) 4028-9876






  

Esclerose Lateral Amiotrfica


Clique aqui - Arquivo 1




  

XIX Simpsio Internacional de ELA/DNM - Birmingham - Inglaterra


Clique aqui - Arquivo 1




  

Manual de uma paciente com ELA


Clique aqui - Arquivo 1




  

Cartilha


Clique aqui - Arquivo 1




  

Faa valer seus direitos.


Clique aqui - Arquivo 1




  

XI Simpsio Internacional de ELA/DNM - Orlando - EUA


Clique aqui - Arquivo 1




  

Primeiro Manual de informaes para pacientes, familiares e cuidadores elaborado pela ABrELA com apoio da Rodia Farma (hoje, Sanofi aventis).


Clique aqui - Arquivo 1




  

XVIII Simpsio Internacional de ELA/DNM Toronto Canad 1 a 3 de dezembro de 2007


Clique aqui - Arquivo 1

Clique aqui - Arquivo 2




  

XVII SIMPSIO INTERNACIONAL DE ELA/DNM 30 de Novembro a 2 de Dezembro de 2006 Yokohama Japo


Clique aqui - Arquivo 1

Clique aqui - Arquivo 2




  

16th International Symposium on ALS/MND XVI Simpsio Internacional de ELA/DNM Dublin Irlanda


Clique aqui - Arquivo 1

Clique aqui - Arquivo 2




  

Manual do Paciente


Clique aqui - Arquivo 1




  

Cartas para ELA

Advogado,empresrio da rea de transporte e pecuarista, Jos Maria, tem uma doena rara e complexa chamada Esclerose Lateral Amiotrfica, ELA.

Cartas para ELA - Jos Maria Moreira de Moraes Jnior

Editora: RVieira Grfica

Ano - 2003




  

Meu Caminho

"Ela parou de falar e de andar, mas no de ser feliz. E nos ensina a fazer o mesmo."

Esta a histria de Adriana. Mas poderia ser a sua tambm e de qualquer pessoa que enfrenta um srio problema. O Problema de Adriana a esclerose lateral amiotrfica,ELA, doena neurolgica que atrofia os msculos e conduz morte. Aos 32 anos, ela perdeu a fala devido doena e, aos poucos, a capacidade de andar. Mas nunca perdeu a f e a fora para sair dessa situao.



Clique aqui para Comprar




  

Viver sem Morrer

O objetivo de Viver sem Morrer a vida com ELA esclerose lateral amiotrfica (Minha Editora selo editorial Manole, 2010, 112 pginas, ISBN: 978 85 7868 013 8) no contar a histria de vida do pai, mas sim o homenagear, apresentando uma forma de lidar com as fases da doena e como ela interage com o corpo do paciente.Como ela mobiliza a famlia e como o paciente precisa de apoio, carinho, amparo dedicao e acima de tudo muito amor.

Clique aqui - Arquivo 1

Clique aqui para Comprar




  

Descasos - Uma Advogadas voltas com o Direito dos Excludos

A obra contm relatos de histrias do perodo em que a autora atuava como advogada "pro bono" em vrios casos. Trata-se de um trabalho muito bonito e comovente, com casos que nos fazem refletir sobre a vida e todos os ensinamentos que esto nossa disposio, mas que, na correria do dia-a-dia, no paramos para avaliar.



Clique aqui para Comprar




  

Poesias para me sentir viva

Obra rene 60 poesias. A autora, portadora de ELA (Esclerose Lateral Amiotrfica), apenas com o movimento dos olhos e contando com o auxlio de uma tabela visual manejada por alguma cuidadora, constri poesias, presentificando um universo de esperana e emoes.

Venda realizada na sede da ABrELA

Visite o site da autora: http://www.leidemoreira.com.br/



Clique aqui para Comprar




  

ELA e eu: Minha relao com a Esclerose Lateral Amiotrfica

Escrito pelo Dr. Silvio Antonio Zanini, um mdico-paciente paciente de esclerose lateral amiotrfica (ELA). Ele mostra como o dia-a-dia com a doena, a perda gradativa dos movimentos e da fala, mas como possvel ainda possuir autonomia e alegria de viver.

http://www.planetanews.com/produto/L/29200/ela-e-eu--minha-relacao-com-a-esclerose-lateral-amiatrofica-silvio-antonio-zanini.html

Clique aqui - Arquivo 1




  

Tese de um Condenado

Escrito pelo Dr. Paulo Gontijo, Engenheiro paciente de esclerose lateral amiotrfica (ELA). Ele mostra como o dia-a-dia com a doena, a perda gradativa dos movimentos e da fala, mas como possvel ainda possuir autonomia e alegria de viver.



Clique aqui para Comprar




  

Iminncia Agnica

Escrito por Charles Klems, trata da histria do patriarca de uma famlia de descendentes alemes que foi acometido de Esclerose Lateral Amiotrfica.



Clique aqui para Comprar




  

A ultima grande lio: O sentido da vida

Escrito por Mitch Albom, trata da histria do seu professor Morrie Schwartz, acometido de uma doena terminal chamada ELA.



Clique aqui para Comprar




  

Letras da minha emoo

Escrito pela advogada Leide Consuelo Quereza Moreira, paciente de Esclerose Lateral Amiotrfica. um belo livro de poesias escrito letra por letra apenas com o movimento dos olhos.

Venda realizada na sede da ABrELA

Clique aqui para acessar o site da AUTORA.



Clique aqui para Comprar




  

Esclerose lateral Amiotrfica: Poemas de Vida e Esperana

Escrito pela psicloga Vnia de Castro. So poemas que tratam do ato de adoecer e nas mudanas na vida dos pacientes e de todos os envolvidos, com a ELA.



Clique aqui para Comprar




  

Manual de Exerccios Domiciliares para pacientes com Esclerose Lateral Amiotrfica Vol.1: Pacientes Independentes

Maria Elisa Pimentel Piemonte, fisioterpeuta, publicou trs manuais de orientao para pacientes com Esclerose Lateral Amiotrfica (ELA) um guia prtico para o paciente, cuidador, mdico e reabilitador.



Clique aqui para Comprar




  

Manual de Exerccios Domiciliares para pacientes com Esclerose Lateral Amiotrfica Vol.2: Pacientes Semidependentes

Apresenta um programa de fisioterapia para quem no pode ir aos centros de tratamento, alm de permitir que o paciente colabore de modo construtivo com o trabalho do fisioterapeuta.



Clique aqui para Comprar




  

Manual de Exerccios Domiciliares para pacientes com Esclerose Lateral Amiotrfica Vol.3: Pacientes Dependentes

Apresenta manobras respiratrias para a sada de secreo dos pulmes e exerccios prticos para atingir melhores resultados.



Clique aqui para Comprar




  

O PACIENTE COM NECESSIDADES ESPECIAIS NA ORTODONTIA - MANUAL PRTICO

MARIA LUCIA ZARVOS VARELLIS, Aborda a avaliao e tratamento bucal em pacientes de diversas doenas, inclusive a Esclerose Lateral Amiotrfica.



Clique aqui para Comprar




  

NEUROLOGIA E FONOAUDIOLOGIA

Vicente Jos Assencio-Ferreira Abrange as questes neurolgicas e os detalhes das doenas que tm inter-relao com a Cincia Fonoaudiolgica.



Clique aqui para Comprar




  

ANESTESIA EM DOENTE COM ESCLEROSE LATERAL AMIOTRFICA CASO CLNICO

Os autores apresentam o caso de uma doente com esclerose lateral amiotrfica em fase terminal, com tetraparesia flcida e atingimento bulbar manifestado por fraqueza dos msculos da regio cervical e farngeos; esta situao clnica limita a doente posio sentada com apoios laterais e posteriores. A doente foi proposta para laparotomia exploradora de urgncia por ruptura de gravidez ectpica. A anestesia geral sem administrao de relaxantes musculares foi a tcnica anestsica escolhida. A cirurgia decorreu sem intercorrncias e a doente foi extubada no final da cirurgia; o ps-operatrio decorreu sem complicaes, sem necessidade de qualquer suporte ventilatrio.

Clique aqui - Arquivo 1






Publicações em Inglês

  

AMYOTROPHIC LATERAL SCLEROSIS A GUIDE FOR PATIENTS AND FAMILIES

Organizador: MUNSAT, THEODORE L.

Organizador: MITSUMOTO, HIROSHI

Editora: PUB GROUP WEST

This comprehensive guide covers every aspect of the management of ALS, beginning with discussions of clinical features of the disease, diagnosis, and an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance.



Clique aqui para Comprar




  

AMYOTROPHIC LATERAL SCLEROSIS

Autor: O'CONNOR, PATRICIA

Autor: MILLER, ROBERT G., M.D.

Autor: GELINAS, DEBORAH F.

Editora: PUB GROUP WEST

Amyotrophic Lateral Sclerosis is not a curable disease, but it is a treatable one.

Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.

Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for ALS sufferers. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discover new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful both in managing the disease and living within its limitations.



Clique aqui para Comprar




  

AMYOTROPHIC LATERAL SCLEROSIS

Organizador: SWASH, MICHAEL

Organizador: BROWN, ROBERT H., JR., M.D.

Organizador: PASINELLI, PIERA,

Editora: TAYLOR & FRANCIS USA


The current edition is not merely an update of the first one; new authors have been recruited and chapter titles reflect changing concepts of pathogenesis.It is difficult to think of any important topics that have been omitted. Clinicians working with patients, the patients and their families, and investigators will appreciate this new, up-to-date, thorough, and handsomely produced volume.


an extremely good book. The chapters are authoritative, clearly written, relatively concise, and well referenced. Although this book is a second edition, it is not mean to replace, but rather to supplement, the first edition.


-Doody's Review Services


The current edition is not merely an update of the first one; new authors have been recruited and chapter titles reflect changing concepts of pathogenesis.It is difficult to think of any important topics that have been omitted. Clinicians working with patients, the patients and their families, and investigators will appreciate this new, up-to-date, thorough, and handsomely produced volume.


an extremely good book. The chapters are authoritative, clearly written, relatively concise, and well referenced. Although this book is a second edition, it is not mean to replace, but rather to supplement, the first edition



Clique aqui para Comprar




  

Amyotrophic Lateral Sclerosis: Diagnosis and Management for the Clinician

ORGANIZADOR: Jerry M. Belsh

ORGANIZADOR: Philip L. Schiffman

EDITORA: Futura Publishing Company



University of Medicine and Dentistry of New Jersey, New Brunswick. Clinical text on the neurodegenerative disease amyotrophic lateral sclerosis, for pathologists and general practitioners. 17 contributors, 16 U.S. DNLM: Amyotrophic Lateral Sclerosis therapy



Clique aqui para Comprar




  

The Official Patient's Sourcebook on Amyotrophic Lateral Sclerosis: A Revised and Updated Directory for the Internet Age

ORGANIZADOR: James N. Parker

ORGANIZADOR: Philip M. Parker

EDITORA: Icon Health Publications



This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to amyotrophic lateral sclerosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on amyotrophic lateral sclerosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Amyotrophic Lateral Sclerosis: Guidelines; Chapter 2. Seeking Guidance;ter 3. Clinical Trials and Amyotrophic Lateral Sclerosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Amyotrophic Lateral Sclerosis; Chapter 5. Patents on Amyotrophic Lateral Sclerosis; Chapter 6. Books on Amyotrophic Lateral Sclerosis; Chapter 7. Multimedia on Amyotrophic Lateral Sclerosis; Chapter 8. Periodicals and News on Amyotrophic Lateral Sclerosis; Chapter 9. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; AMYOTROPHIC LATERAL SCLEROSIS GLOSSARY; INDEX. Related topics include: Amyotrophic Lateral Sclerosis-Polyglucosan Bodies, Aran-Duchenne Muscular Atrophy, Gehrig's Disease, Lou Gehrig's disease, Motor neuron disease, Motor System Disease (Focal and Slow).



Clique aqui para Comprar




  

Tuesdays with Morrie: An Old Man, a Young Man, and Life's Greatest Lesson

ORGANIZADOR: Mitch Albom

EDITORA: Broadway



This true story about the love between a spiritual mentor and his pupil has soared to the bestseller list for many reasons. For starters: it reminds us of the affection and gratitude that many of us still feel for the significant mentors of our past. It also plays out a fantasy many of us have entertained: what would it be like to look those people up again, tell them how much they meant to us, maybe even resume the mentorship? Plus, we meet Morrie Schwartz--a one of a kind professor, whom the author describes as looking like a cross between a biblical prophet and Christmas elf. And finally we are privy to intimate moments of Morrie's final days as he lies dying from a terminal illness. Even on his deathbed, this twinkling-eyed mensch manages to teach us all about living robustly and fully. Kudos to author and acclaimed sports columnist Mitch Albom for telling this universally touching story with such grace and humility. --Gail Hudson --This text refers to the Hardcover edition.



Clique aqui para Comprar




  

Amyotrophic Lateral Sclerosis: New Research

ORGANIZADOR: Christine A. Murray

EDITORA: Nova Biomedical Books



Clique aqui para Comprar




  

Amyotrophic Lateral Sclerosis in Veterans: Review of the Scientific Literature

ORGANIZADOR: Committee on the Review of the Scientific Literature on Amyotrophic Lateral Sclerosis in Veterans

EDITORA: National Academies Press

Examines amyptrophic lateral sclerosis in veterans. Offers an introduction to the issues and categories of association. Includes evidence regarding amyotrophic lateral sclerosis in veterans, examines studies, includes recommendations, and offers examples of risk factors possibly relevant to military service. For researchers. Softcover.



Clique aqui para Comprar




  

Palliative Care in Amyotrophic Lateral Sclerosis: From Diagnosis to Bereavement

ORGANIZADOR: David Oliver

ORGANIZADOR: Gian Domenico Borasio

ORGANIZADOR: Declan Walsh

EDITORA: Oxford University Press

Amytrophic Lateral Sclerosis (or motor neurone disease) is a rare disease but one that can cause profound suffering for both the patient and their family.

Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in discussion of bereavement. The experience of patients and families is considered and case studies are provided to show the practical application of the theoretical knowledge. Different models of care are explored, and this new edition utilises the increase in both the evidence-base and available literature on the subject. Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care ensure that this new edition remains the essential guide to palliative care in ALS.



Clique aqui para Comprar




  

Luckiest Man: The Life and Death of Lou Gehrig

Jonathan Eig

Simon & Schuster

Lou Gehrig started his professional baseball career at a time when players began to be seen as national celebrities. Though this suited charismatic men such as Babe Ruth and Joe DiMaggio, Gehrig avoided the spotlight and preferred to speak with his bat. Best known for playing in 2,130 consecutive games as well as his courage in battling amyotrophic lateral sclerosis (a disease that now bears his name), the Iron Horse that emerges from this book is surprisingly nave and insecure. He would cry in the clubhouse after disappointing performances, was painfully shy around women (much to the amusement of some of his teammates), and particularly devoted to his German-immigrant mother all his life. Even after earning the league MVP award he still feared the Yankees would let him go. Against the advice of Ruth and others, he refused to negotiate aggressively and so earned less than he deserved for many seasons. Honest, humble, and notoriously frugal, his only vices were chewing gum and the occasional cigarette. And despite becoming one of the finest first basemen of all time, Jonathan Eig shows how Gehrig never seemed to conquer his self-doubt, only to manage it better.

Jonathan Eig's Luckiest Man: The Life and Death of Lou Gehrig offers a fascinating and well-rounded portrait of Gehrig, from his dugout rituals and historic games to his relationships with his mother, wife, coaches, and teammates. His complex friendship with Ruth, who was the polar opposite to Gehrig in nearly every respect, is given particularly vivid attention. Take this revealing description of how the two men began a barnstorming tour together following their 1927 World Series victory: "Ruth tipped the call girls and sent them on their way. Gehrig kissed his mother goodbye." Eig also shares some previously unknown details regarding his consecutive games streak and how he dealt with ALS during the final years of his life. Rich in anecdotes and based on hundreds of interviews and 200 pages of recently discovered letters, the book effectively shows why the Iron Horse remains an American icon to this day. --Shawn Carkonen --This text refers to the Hardcover edition.



Clique aqui para Comprar






Livros Falados

  

Capites da Areia


Clique aqui




  

O Alienista


Clique aqui




  

O Pequeno Principe


Clique aqui




  

O Caso dos Dez Negrinhos


Clique aqui




  

O Seminarista


Clique aqui




  

SPE SALVI


Clique aqui




  

Um Certo Capito Rodrigo


Clique aqui




Beesoft Rua Botucatu, 395/397 Vila Clementino So Paulo SP 04023-061
Tel:(11) 5579-2668 - abrela@abrela.org.br - © Copyright - Todos os direitos reservados